Just made it. Had to stop a few times to tend to Rachel, but she was a trooper. Stopped in Bedford to fill a couple prescriptions. Just got through with the tour of everything I’ve done while she was gone. It’s SO good to have her home!
We are in the car and I am taking my girls home with me! This has been a long time coming but we are glad it is here! They gave rachel pain medicine for the trip home and a nurse will be meeting us there to help us get set up with the pump.
Well the doctor was just in and he said we can go home around noon. (It takes John about that long to ger here anyway)
He said Dr. Katz was surprised we are not going to Childrens after this. I told him Childrens Institute said that we werent needed to go back. [...]
Well.. We saw Dr. Katz and she said we will probably go home tomorrow. The doctor was concerned Rachel has not had a bm in a few days so she ordered a supository and it worked. My room stinks. That was the last step to home I think. This should be [...]
Well I just saw one of Dr. Katz’s associates and he said about keeping Rachel until tomorrow. They took off her pulse ox so the only thing she is hooked to is her feed pump which she will go home on.
I have a cold sore coming I am so upset, I [...]
Well… Rachel and I were cuddling in front of tv she flipped herself onto the floor. Thank goodness a pillow fell before she did that pulled out her iv. It scared me to death! She was scared but not hurt since no part of her body hit the floor! I picked her up [...]
we are up to 30 ml/hour her iv is down to 10 ml so when she gets to 40 ml on her feed (6 hours) the iv should stop if she tolerates it. Her goal before going home is 56 ml/hour!
she goes up 5ml every 3 hours
Last night we slept from 9 pm until 6:30 or 7 am. (No clock in my room so I have to guess) Rachel slept through the night, no waking up, she left her iv in! Today she yucked up a little and she is at 20 ml an hour now. They finally got [...]
Well. I found out today that the hospital has loaner laptops for patient and parent use! I called and had one within a half hour. The guy in charge of the service says I am doing good because there have been people waiting for a computer for a long time and I got [...]
Just heard from Becka they changed her pain medicine – no more itching! She seems very comfortable and when she whimpers they give her more. She’s taking a nap right now, but so far so good. No word on if they’ve tried any feeding yet…